Monday, July 19, 2010

Daniel is in the hospital again...

Well, it's been since before our move that I last blogged. I've been incredibly busy and preoccupied with getting my new house and yard the way I want it. I've also been meaning to upload some before/after pics, but just haven't made the time to do it. But the house is coming along. On the other hand, Daniel has not been feeling well enough to help with much.

I don't know if it's the stress of the move or what, but he's been having flare-ups of his ulcerative colitis. It's an auto-immune disorder sort of related to Crohn's disease, but only affects the large intestine. Daniel was diagnosed 2 years ago after a few tiny symptoms and a colonoscopy. Daniel's brother had it too. He was diagnosed at 14 and had his colon removed at 19. He had it pretty severely. Daniel has not really had many issues since his diagnosis, only a few minor dosage changes to his meds. And then WHAM! About 4 weeks ago, he develops some gut pains and going to the bathroom a lot. He went in to see his doctor who immediately admitted him to the hospital for treatment. He was there for 3 days and 2 nights and had a scope while he was in. The doctor said it looked pretty bad. They prescribed predinsone and oral antibiotics.

2 weeks later, he saw his doctor and was feeling fine. They started and ever-so-slight taper on his prednisone. That next day, he started having pain again. This pain was very intermittent. This went on for a few days and then it started to get more frequent and then constant. The doctor was called twice that week and they gave him another prescription and made other changes, but it didn't help. He didn't (and therefore neither did I) sleep a wink on Friday night. So Saturday morning, I loaded him in the car and we headed for Brookwood Hospital ER. Why drive to Birmingham? Well, his doctors are at Brookwood and we want them taking care of him since they know him. They are doing the same treatment in the hospital and he's having a scope sometime later this morning to look at his colon. Then we'll gather a game plan for a new meds. It looks like he'll be going on immunosuppressants. They reduce inflammation and autoantibody production. This will help Daniel's condition greatly, but he'll have a harder time fighting an infection than normal. The only real cure for ulcerative colitis is to remove his colon, like his brother. I'm sure they want to explore other medications prior to this drastic procedure. I just want Daniel to stay out of the hospital and feel well.